Tricuspid Atresia Study

Condition: Congenital heart disease

Eligibility

Key Inclusion Criteria

  • Diagnosis of tricuspid atresia with normally related great arteries
  • <3 months old at the time of diagnosis
  • Admitted to a Congenital Heart Surgeons Society (CHSS) institution on or after January 1, 1999

Key Exclusion Criteria

  • First intervention at a non-CHSS institution
  • >3 months old at time of diagnosis
  • Patients with atrioventricular or ventriculoarterial discordance

Full Study Name

Tricuspid Atresia Study (IRB no. 44485)

Summary

The purpose of this research registry is to gather information across hospitals in North and South American from patients with tricuspid atresia (an absent right heart valve) who have had the condition since birth. Researchers aim to understand the differences in outcomes of these patients in light of their medical characteristics and treatment. To this end, medical records will be reviewed, and participants will be asked to complete questionnaires about medications, exercise limitations, surgeries or procedures and overall quality of life.


Principal Investigator

Myriam Almeida-Jones, MD

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