Anomalous Aortic Origin of a Coronary Artery

Condition: Congenital heart disease

Eligibility

Key Inclusion Criteria

  • Diagnosis and/or management of anomalous aortic origin of a coronary artery (AAOCA) at a Congenital Heart Surgeons Society member institution from January 1, 1998 forward
  • ≤30 years old at the time of diagnosis
  • Structurally normal heart or with small, hemodynamically insignificant lesion (lesion that does not significantly affect blood flow)

Key Exclusion Criteria

  • Anomalous coronary from the pulmonary artery, coronary artery atresia, or other coronary artery anomalies
  • Hemodynamically significant structural heart disease (disease that affects blood flow)

Full Study Name

Determining the Natural and Unnatural History of Anomalous Aortic Origin of a Coronary Artery with Interarterial or Intraconal or Intramural Course (AAOCA): Establishing a Multi-Institutional Registry (IRB no. 42857)

Summary

This research registry focuses on patients who have an abnormal coronary artery that has been present since birth. The purpose of the study is to gather information from children and young adults with congenitally abnormal coronary arteries (AAOCA) in North and South American hospitals. Researchers aim to understand the differences in outcomes of AAOCA patients among those who undergo surgery to correct their arteries and those who do not. To this end, patients will be asked to complete questionnaires, and researchers will collect information from medical records about diagnoses, medications, tests and hospitalizations/surgeries (if applicable).


Principal Investigator

Myriam Almeida-Jones, MD

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