Research for Her FAQs
If you need technical assistance using the research for her registry, please download our Technical Assistance FAQ as a quick reference guide.
research for her is a large data registry sponsored by the Women’s Cancer Program at the Samuel Oschin Comprehensive Cancer Institute. The purpose of the registry is to:
- Aid in the development of future risk assessment models to help predict cancer risks
- Identify candidates for participation in clinical trials and studies. Studies may include clinical therapeutic trials for those with a personal history of cancer, screening studies for those without cancer, and other epidemiologic studies that follow individuals over time for data collection
- Track outcomes of patients who are treated at participating centers and offices to find opportunities to improve care
Joining the registry is a way to be a part of efforts to improve early detection of cancers and to better target treatments for individuals with a cancer. For those without cancer, joining the registry is a way to learn about screening trials that seek to find early detection of cancers. For those with cancer, joining the registry is a way to learn about clinical therapeutic trials that may expand treatment opportunities. For all women, joining the registry is a way to show support of the research to end cancer as a threat to women.
It will only take you about 10-15 minutes to complete the consent and to answer the short questionnaire.
Yes. Any woman over the age of 18, with or without cancer, are invited participate in the research for her registry. We are very interested in enrolling all women, regardless of health history.
No. Participation in any clinical research study is completely voluntary and will not impact your medical care in any way.
Yes. The Women's Cancer Program partners with many other research institutions and would be able to link participants to research studies in other cities, if appropriate.
No. You will only be contacted if a study becomes available that you are qualified to participate in. New studies open often, so even if you are not contacted immediately after consenting, you may be contacted in the future.
Yes. Participation in any research study is completely voluntary. You will be notified by registry staff if you may be eligible for another study. At that time, you can decide if you would like to participate or not. If you choose to participate in the additional study, you will need to sign a consent for participation in the new study.
Yes. If you choose not to participate in a study, you will still be contacted about additional studies that become available.
Clinical therapeutic trials are a treatment option for many people with cancer. By participating in cancer treatment research studies, you have the opportunity to help doctors discover new and improved ways to fight this disease. All of the treatments we have today are available because others volunteered to participate in clinical trials.
There are other clinical research studies available at Cedars-Sinai that are not focused on treating cancer. For example, there are some studies focused on early detection and screening and there are other studies focused on gathering clinical data to better understand risks associated with certain types of cancers.
Yes. There are many clinical trials available at the Cedars-Sinai Samuel Oschin Comprehensive Cancer Institute. To see if you qualify for one of the clinical trials, you will need to undergo trial-specific screening tests, as well as an assessment from one of the study doctors. Please call our Clinical Trial Recruitment Navigator at 310-423-2133 for additional details and to learn about available trials.
All demographic and clinical information you provide is secured in a protected database and will remain confidential.